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The Positive Impact of Journaling on Adolescents with Cystic Fibrosis
  • +2
  • Sean Kow,
  • Brenda Rieger,
  • Kimberly Morse,
  • Thomas Keens,
  • Susan Wu
Sean Kow
Children's Hospital Los Angeles

Corresponding Author:[email protected]

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Brenda Rieger
Children's Hospital Los Angeles
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Kimberly Morse
Children's Hospital Los Angeles
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Thomas Keens
Children's Hospital Los Angeles
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Susan Wu
Children's Hospital Los Angeles
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Abstract

Background Individuals with cystic fibrosis (CF) often have psychological difficulties on top of their medically complex care, such as anxiety, depression, and medical mistrust. These have been shown to be associated with worse adherence, pulmonary function test results, and other health outcomes. In this pilot trial, we implemented a journaling program based on narrative therapy methodology to improve mental and physical health outcomes for individuals with CF. Methods Eight adolescents aged 12-17 with a confirmed diagnosis of CF followed in a single center cystic fibrosis clinic were emailed weekly journaling prompts that explored topics like: treatment adherence, feeling different with CF, anxiety, depression, and interpersonal relationships. Subjects were emailed surveys about their experience with the writing assignment, and baseline health data was collected from the electronic medical records. Results The average score for the Pediatric Symptom Checklist (PSC-17) decreased by 5.5 points, and the post-study average (mean 23.5, SD 12.2) fell to less than 28, which is the cutoff for screening positive for behavioral or emotional problems. Participants reported the study was enjoyable and had improvement in feelings of anxiety/depression. 100% of participants responded “Strongly Agree” to the statement “I recommend other people with CF to write about the topics from this study”. Conclusions The journaling intervention for individuals with CF was feasible and well received. Initial results show improvement in PSC-17 and other wellbeing measures. Further studies are needed to evaluate the impact of journaling on mental health and disease outcomes.