Acknowledgements:
The authors thank all the research coordinators and study staff at the participating institutions for assisting with subject recruitment, consent, and oversight of regulatory processes. We thank Errine Garnett (Vanderbilt) for management of the initial Registry development. We also thank Alicia Hurnton (CHOP) for project management and coordination of the Registry and Emma Escobar at CHOP for database development and support. We recognize Dr. Andrea Heras (Weill Cornell; New York, NY), Dr. Alvin Singh (Children’s Mercy; Kansas City, MO) and Dr. Matejka Cernelc-Kohan (Rady Children’s, University of California San Diego, CA) for their administrative contributions during transitions in study PI at their sites. We also want to recognize the following sites who have joined the Registry but had not enrolled subjects prior to this data lock: Children’s Hospital of Atlanta (Atlanta, Georgia), Helen deVos Children’s Hospital (Grand Rapids, Michigan), and Children’s Hospital at Montefiore, Albert Einstein (New York).
We recognize the following additional members of the chILD Registry collaborative: Emily DeBoer (Colorado), Jenna Bucher (Oregon), Maureen Dunn (CHOP), Amjad Horani (St. Louis Children’s Hospital, Washington University), Christin Kuo (Stanford), Sharon McGrath-Morrow (CHOP), Jennifer Pogoriler (CHOP), David Speilberg (Lurie Children’s), Jonathan Popler (Children’s Hospital of Atlanta), Kristie Ross (Rainbow Babies and Children), Timothy Vece (UNC), and Johanna Zea-Hernandez (Helen DeVos). Lastly, we thank the patients and families with chILD who inspired this work.