Conclusion
The disease elimination initiative is a major strategic and political
challenge for governments, civil society, academia, and the private
sector. The government has launched a number of SCD eradication
initiatives, such as training, screening, data management, and financial
help, but it now needs to develop a multi-sectoral strategy under a
single umbrella with the shared objective of eliminating SCD by 2047.
The psychosocial effects of SCD are substantial. Low self-esteem and a
sense of hopelessness emerges in SCD patients due to ongoing discomfort
(recurrent pain episodes), frequent hospital visits, a lack of
professional possibilities, dread of an early death, financial load, and
societal ignorance. Ultimately, these instances point to depression in
patients. For reducing psychological issues among SCD patients there is
a pressing need for including the six support pillars, as suggested
here, in the road map of SCD elimination programs. This will create a
strong network for awareness about disease, the treatment and monitoring
of patients. The inclusion of support pillars in healthcare facilities
and ecosystem would guarantee SCD patients a high quality of life
because they serve as a tipping point for their psychological
well-being. Efficient management of SCD requires combined approach of
clinical parameters along with psychological parameters. These pillars
offer a comprehensive approach that encompasses various aspects of
support, education, and empowerment for individuals and families
affected by SCD. The implementation of a comprehensive and
multidisciplinary approach by the government is crucial for addressing
the diverse needs of individuals affected by SCD. To ensure effective
support, a well-planned infrastructure or roadmap should be established.
By integrating these pillars, policymakers can create a supportive
environment that addresses both the physical and psychological burdens
associated with sickle cell disease. This holistic approach will not
only improve the quality of life for individuals with the condition but
also promote a more inclusive and compassionate society that values the
well-being of all its members Just like a vibrant garden, the study of
SCD has experienced remarkable growth, encompassing the intricate
aspects of psychological factors within the management approach. With a
strong foundation established, it radiates a beacon of optimism for
numerous individuals, spreading its therapeutic influence to those
around the globe who endure the burdens of SCD “The goal of the
support pillars is to provide ”happy, prolific and long life those who
live with SCD”
Ethic statement - Not applicable